If you are local no doubt you will of heard of this facebook site by now. People are trying to raise 300k to send a little girl with Cancer to the USA for treatment that cannot be done here.
The page was only started by one of Lily's friends on Thursday night and the momentum it has created is truly astonishing with over 60,000 people joining the page and spreading the word. The txt is here from a friend of Lily's, If you can help by just spreading the word any way you can. or donating just £1 that would be fantastic.
This is the page https://www.facebook.com/groups/781...1579336388599585¬if_t=group_comment_follow and the txt about Lily is below.
Thanks so much.
John,
? Lilys friend also Lille, set this page up as an online fundraiser. It’s gone crazy which is amazing. Lots of questions of authenticity which is fine and I hope this clears everything up. If not please ask me, I’m her mum.
? Who is Lily? Lily is my daughter, she’s 14, she is from Eastwood in Essex. She has an inoperable brain tumour called DIPG.
? Why fundraise? Lily cannot have treatment here in the UK as there isn’t any. Nope none!! Shocking but, true. The US have two clinical trials that sound promising for her cancer. Trials and private medical expenses in the US are not affordable on the average UK household income.
? To follow Lilys journey please like her page Lily’s battle with Brain Cancer
? We are not a registered charity, you cannot register a charity on an individual fundraising basis. We do have a registered charity supporting us, taking donations for those who need a charity number if you need it let me know.
? This is an online fundraiser, we have a go fund me page, however the minimum donation is £5. Being that Lily’s friend Lillie wanted everyone to donate a pound we have added PayPal and bank transfer details.
? We will be keeping you up to date with fundraising amounts and how it’s being used.
? if you want to donate now instead of waiting till we reach 300,000 people then feel free using the methods below.
? The money was originally going towards a trial called ONC201, this is a drug that suppresses the cancer and shrinks the tumour. It’s $150,000 deposit, then flights, returning to the US every 21 days for treatment, an initial 3 weeks stay for accommodation, medical care while there, a replacement VP shunt (which saved Lilys life so far ) is $50,000 to $80,000 in the US should she need it replaced, which is a possibility as it can malfunction. Since Lilys diagnosis a new trial called Brainchild03 which is Cart T Cells and is starting in March, price unknown at this time. This looks to be more promising than the drug ONC201 because Lilys own T Cells will recognise the cancer and keep it away. Depending on when we need to act we will be joining one of these two trials. The money raised will 100% be going to Lilys treatment. Her tumour is unpredictable and aggressive.
? How to donate direct to Lilys fund.
PayPal: Martinwythe@live.co.uk
Bank Transfer:
Diane & Martin Wythe
Santander
09-01-29
34462676
Go fund me: (charge 2.9% of your donation in fees)
https://www.gofundme.com/f/help-lily-battle-brain-cancer
?? A massive heartfelt thank you from all of Lilys family and friends ??
The page was only started by one of Lily's friends on Thursday night and the momentum it has created is truly astonishing with over 60,000 people joining the page and spreading the word. The txt is here from a friend of Lily's, If you can help by just spreading the word any way you can. or donating just £1 that would be fantastic.
This is the page https://www.facebook.com/groups/781...1579336388599585¬if_t=group_comment_follow and the txt about Lily is below.
Thanks so much.
John,
? Lilys friend also Lille, set this page up as an online fundraiser. It’s gone crazy which is amazing. Lots of questions of authenticity which is fine and I hope this clears everything up. If not please ask me, I’m her mum.
? Who is Lily? Lily is my daughter, she’s 14, she is from Eastwood in Essex. She has an inoperable brain tumour called DIPG.
? Why fundraise? Lily cannot have treatment here in the UK as there isn’t any. Nope none!! Shocking but, true. The US have two clinical trials that sound promising for her cancer. Trials and private medical expenses in the US are not affordable on the average UK household income.
? To follow Lilys journey please like her page Lily’s battle with Brain Cancer
? We are not a registered charity, you cannot register a charity on an individual fundraising basis. We do have a registered charity supporting us, taking donations for those who need a charity number if you need it let me know.
? This is an online fundraiser, we have a go fund me page, however the minimum donation is £5. Being that Lily’s friend Lillie wanted everyone to donate a pound we have added PayPal and bank transfer details.
? We will be keeping you up to date with fundraising amounts and how it’s being used.
? if you want to donate now instead of waiting till we reach 300,000 people then feel free using the methods below.
? The money was originally going towards a trial called ONC201, this is a drug that suppresses the cancer and shrinks the tumour. It’s $150,000 deposit, then flights, returning to the US every 21 days for treatment, an initial 3 weeks stay for accommodation, medical care while there, a replacement VP shunt (which saved Lilys life so far ) is $50,000 to $80,000 in the US should she need it replaced, which is a possibility as it can malfunction. Since Lilys diagnosis a new trial called Brainchild03 which is Cart T Cells and is starting in March, price unknown at this time. This looks to be more promising than the drug ONC201 because Lilys own T Cells will recognise the cancer and keep it away. Depending on when we need to act we will be joining one of these two trials. The money raised will 100% be going to Lilys treatment. Her tumour is unpredictable and aggressive.
? How to donate direct to Lilys fund.
PayPal: Martinwythe@live.co.uk
Bank Transfer:
Diane & Martin Wythe
Santander
09-01-29
34462676
Go fund me: (charge 2.9% of your donation in fees)
https://www.gofundme.com/f/help-lily-battle-brain-cancer
?? A massive heartfelt thank you from all of Lilys family and friends ??
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